Hayley Okines is the world recognised face of the rare medical condition
Progeria – which causes the body to age eight times faster than normal.
The filmmakers in this documentary have followed Hayley’s life since
she was just four years old and now her condition enters a new and
challenging phase. Hayley’s hip joints have deteriorated so much that
she must wear a metal brace all the time. She is unable to attend school
regularly or move about freely. Like most teenage girls Hayley is
interested in Justin Bieber, shopping, looking pretty and finding a
boyfriend, but her body has entered the painful decline into physical
old age her family has long feared. Hayley is now old enough to be fully
conscious of the ramifications of her condition and she is startling in
her frankness. But she refuses to be beaten by it – she is determined
to fulfill her dreams of becoming a beautician and, one day, finding
true love.
